http://www.ebsteins.org is a site dedicated to bringing the medical profession and those affected by the rare congenital heart condition called “Ebstein’s Anomaly” together.

For the first time, this site provides a focal point for research, information and dialogue between those affected by this serious heart condition and the medical profession. It it hoped that, through use of this focal point, the diagnosis, treatment, and understanding of the condition can be better co-ordinated and therefore improved.

Founded by concerned parent Caroline Clarke and with the support of specialist medical consultants from Bristol Children’s Hospital, this site provides a repository of helpful information, news, and forums to support both medics and those affected by the condition.

Systanet constructed the site based on Wordpress with modified theme XHTML/CSS templates to provide a rapidly constructed yet tailored solution based on existing and proven publishing engine technology.